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| Web Pages |
| Children's PKU Network |
| Organisation offering education and direct assistance. Includes details of projects, plus links to food suppliers. |
| National PKU News |
| Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support. |
| Genes and Diseases: Phenylketonuria |
| Brief genetic information. |
| Medline Plus: Phenylketonuria |
| Definition, causes, symptoms and treatment. |
| Phenylketonuria |
| Definition, causes, symptoms and treatments. |
| PKU-Info.org |
| Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German] |