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| Web Pages |
| Cystinosis Central |
| Information about this disorder, conferences, data for physicians, updates and links. |
| Cystinosis Research Network |
| Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources. |
| Cystinosis Foundation |
| Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising. |
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